The UNFOLD study aims to identify the processes involved in developing an identity as a ‘person in recovery’, and how recovery from mental ill health may ‘unfold’ over time. It is funded by the NIHR Biomedical Research Centre.
To date almost all empirical studies of recovery have been retrospective and focussed on psychological change. In this longitudinal study, we will measure levels of wellbeing, contact with social groups and level of social identification. These variables will be measured using the experience sampling method, which will also allow us to detect temporal precedence between variables.
Investigation of how recovery occurs prospectively has the potential to reduce or eliminate recall biases, produce more valid data and potentially lead to a better understanding of personal recovery.
Aims and objectives
Aim 1 is to assess digital data collection methods to evaluate prospective assessment of identity change.
1.1 To characterise digital approaches to data collection
1.2 To evaluate these approaches in a research context
1.3 To apply active and passive approaches to data collection and make recommendations
Aim 2 is to characterise the processes involved in developing an identity as a ‘person in recovery’ with particular attention to social identity and sense of wellbeing.
2.1 To evaluate the relationship between social identity change and eudaimonic wellbeing
Hypothesis 1: Increase in social contact with members of social groups over time precedes increased sense of eudaimonic wellbeing
Hypothesis 2: Participants who maintain group memberships from baseline to follow up will report higher levels of wellbeing than those who do not maintain group memberships
2.2 To explore the role of social relationships in recovery from psychosis.
The study has two phases.
Phase 1: The study will start with the collection of smartphone data from 50 participants. Participants will be asked to fill out questionnaires sent to their smartphone about their wellbeing social environment. This phase will last for 9 months.
Phase 2: Semi-structured interviews will be carried out with ten of the participants, to expand on and to inform interpretation of the phase one results. Participants will be asked about changes in their social identity, such as: how the groups they use to describe themselves/define themselves has changed, and how have changes in groups influenced their recovery.
We are looking for 50 people to recruit to the UNFOLD study:
- Aged 18-65
- Currently using community mental health services provided by Nottinghamshire Healthcare NHS Foundation Trust
- Meet DSM-5 diagnostic criteria for psychotic disorder
- Own and regularly use a smartphone with an Android operating system.
- Are fluent in English
- Willing and able to complete self-reported assessments via smartphone.
- Able to give informed consent for participation.
If you are interested in taking part, or would like any further information please contact Emilia Deakin at Emilia.Deakin@nottingham.ac.uk
We are conducting a systematic review of design decisions in experience sampling methods in psychosis.
The protocol was pre-registered:
Deakin E, Slade M, Craven M, Coupland C, Young E Design decisions and data completeness for experience sampling methods used in psychosis: systematic review. PROSPERO: International prospective register of systematic reviews. 2019. CRD42019125545. Available from: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019125545