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Outputs

What is a recovery narrative?

Systematic review and narrative synthesis to develop a conceptual framework characterising recovery narratives:

Llewellyn-Beardsley J, Rennick-Egglestone S, Callard F, Crawford P, Farkas M, Hui A, Manley D, McGranahan R, Pollock K, Ramsay A, Tore Sælør K, Wright N, Slade M (2019) Characteristics of mental health recovery narratives: systematic review and narrative synthesis, PLOS ONE, 14, e0214678.  Available from: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0214678

Based on a pre-registered review protocol:

Beardsley J, Rennick-Egglestone S, Morgan K, Ramsay A, Callard F, Farkas M, McGranahan R, Pollock K, Manley D, Slade M (2018) Characteristics of mental health recovery narratives as interventions to improve health and wellbeing: a systematic review and narrative synthesis. PROSPERO: International prospective register of systematic reviews. CRD42018090188. Available from: http://www.crd.york.ac.uk/PROSPERO/display_record.php?ID=CRD42018090188.

The conceptual framework was validated in interviews with people from under-researched groups:

Llewellyn-Beardsley J, Rennick-Egglestone S, Bradstreet S, Davidson L, Franklin D, Hui A, McGranahan R, Morgan K, Pollock K, Ramsay A, Smith R, Thornicroft G, Slade M (2020) Not the story you want?  Assessing the fit of a conceptual framework characterising mental health recovery narratives, Social Psychiatry and Psychiatric Epidemiology, 55, 295-308. Available from: https://link.springer.com/article/10.1007/s00127-019-01791-x.

The conceptual framework was used to create the INCRESE instrument to characterise recovery narratives:

Llewellyn-Beardsley J, Barbic S, Rennic-Egglestone S, Ng F, Roe J, Hui A, Franklin D, Deakin E, Hare-Duke L, Slade M (2020) INCRESE: Development of an Inventory to Characterize Recorded Mental Health Recovery Narratives, Journal of Recovery in Mental Health, 3, 25-44.

Impact of recovery narratives

Systematic review and narrative synthesis to develop an impact framework describing the impact of recovery narratives on recipients:

Rennick-Egglestone S, Morgan K, Llewellyn-Beardsley J, Ramsay A, McGranahan R, Gillard S, Hui A, Ng F, Schneider J, Booth S, Pinfold V, Davidson L, Franklin D, Bradstreet S, Arbour S, Slade M (2019) Mental health recovery narratives and their impact on recipients: systematic review and narrative synthesis, Canadian Journal of Psychiatry, 64, 669-679.  Available from: https://journals.sagepub.com/doi/pdf/10.1177/0706743719846108

Based on a pre-registered review protocol:

Morgan K, Rennick-Egglestone S, Beardsley J, McGranahan R, Ramsay A, Gillard S, Schneider J, , Pinfold V, Davidson L, Morrison T, Slade M (2018) The impacts of mental health recovery stories on the recipient: a systematic review and narrative synthesis. PROSPERO: International prospective register of systematic reviews. PROSPERO: International prospective register of systematic reviews. CRD42018090923 Available from: http://www.crd.york.ac.uk/PROSPERO/display_record.php?ID=CRD42018090923.

The impact framework was developed into a change model through interviews with people from under-researched groups:

Rennick-Egglestone S, Ramsay A, McGranahan R, Llewellyn-Beardsley J, Hui A, Pollock K, Repper J, Yeo C, Ng F, Roe J, Gillard S, Thornicroft G, Booth S, Slade M (2019) The impact of mental health recovery narratives on recipients experiencing mental health problems: qualitative analysis and change model, PLOS ONE, 14, e0226201. Available from: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0226201

A causal change model for impact through connection was then experimentally developed:

Ng F, Charles A, Pollock K, Rennick-Egglestone S, Cuijpers P, Gillard S, van der Krieke L, Bongaardt R, Pomberth S, Repper J, Roe J, Llewellyn-Beardsley J, Yeo C, Hui A, Hare-Duke L, Manley D, Slade M (2019) The mechanisms and processes of connection: Developing a causal chain model capturing impacts of receiving recorded mental health recovery narratives, BMC Psychiatry, 19, 143.  Available from: https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-019-2405-z

Curation of recovery narrative collections

Systematic review and qualitative synthesis to develop a curation framework capturing decisions involved in curating recovery narratives:

McGranahan R, Rennick-Egglestone S, Ramsay A, Llewellyn-Beardsley J, Bradstreet S, Callard F, Priebe S, Slade M (2019) The Curation of Mental Health Recovery Narrative Collections: Systematic Review and Qualitative Synthesis, JMIR Mental Health, 6, e14233.  Available from: https://mental.jmir.org/2019/10/e14233

Based on a pre-registered review protocol:

McGranahan R, Priebe S, Ramsay A, Beardsley J, Morgan J, Rennick-Egglestone S, Slade M (2018)  The curation of recovery narrative collections: a systematic review and preliminary synthesis. PROSPERO: International prospective register of systematic reviews. CRD42018086997. Available from: http://www.crd.york.ac.uk/PROSPERO/display_record.php?ID=CRD42018086997

A consultation with 30 curators from 7 countries developed the VOICES typology for curatorial decisions:

Yeo C, Hare-Duke L, Rennick-Egglestone S, Bradstreet S, Callard F, Hui A, Llewellyn-Beardsley J, Longden E, McDonough T, McGranahan R, Ng F, Pollock K, Roe J, Slade M (2020) The VOICES typology of curatorial decisions in narrative collections of the lived experiences of mental health service use, recovery or madness: qualitative study, JMIR Mental Health, 7, e16290. Available from https://mental.jmir.org/2020/9/e16290

A systematic review of content and trigger warnings is being conducted:

Charles A, Hare-Duke L, Nudds H, Franklin D, Llewelyn-Beardsley J, Rennick-Egglestone S, Gust O, Ng F, Evans E, Knox E, Townsend E, Yeo C, Slade M (2020) Content and trigger warnings typology: systematic review. PROSPERO: International prospective register of systematic reviews. CRD42020197687. Available from: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020197687

Learning from recovery narratives

Development of a conceptual framework for post-traumatic growth in the context of recovery for people with severe mental health problems through interviews with people from under-researched groups:

Slade M, Rennick-Egglestone S, Blackie L, Llewellyn-Beardsley J, Franklin D, Hui A, Thornicroft G, McGranahan R, Pollock K, Priebe S, Ramsay A, Roe D, Deakin E (2019) Post-traumatic growth in mental health recovery: qualitative study of narratives. BMJ Open, 9, e029342. Available from: https://bmjopen.bmj.com/content/9/6/e029342.abstract

Exploration of staff views about using recorded recovery narratives in clinical practice:

Roe J, Brown S, Yeo C, Rennick-Egglestone S, Repper J, Ng F, Llewelyn-Beardsley J, Hui A, Cuijpers P, Thornicroft G, Manley D, Pollock K, Slade M (2020) Opportunities, enablers and barriers to the use of recorded recovery narratives in clinical settings, Frontiers in Psychiatry, 11, 589731. Available from https://www.frontiersin.org/articles/10.3389/fpsyt.2020.589731/full

NEON randomised controlled trials

The development of the NEON Intervention:

Slade M, Rennick-Egglestone S, Llewellyn-Beardsley J, Yeo C, Roe J, Bailey S, Smith R, Booth S, Harrison J, Bhogal A, Moran P, Hui A, Quadri D, Robinson C, Smuk M, Farkas M, Davidson L, van der Krieke L, Slade E, Bond C, Nicholson J, Grundy A, Charles A, Hare-Duke L, Pollock K, Ng F Using recorded mental health recovery narratives as a resource for others: Narrative Experiences Online (NEON) intervention development, JMIR Formative Research, in press.

The protocol for the three NEON trials:

Rennick-Egglestone S, Elliott R, Smuk M, Robinson C, Bailey S, Smith R, Keppens J, Hussain H, Pollock K, Cuijpers P, Llewellyn-Beardsley J, Ng F, Yeo C, Roe J, Hui A, Krieke L, Walcott R, Slade M (2020) Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis, people experiencing other mental health problems and for informal carers: Narrative Experiences Online (NEON) study protocol for three randomised controlled trials, Trials, 21, 661.