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Findings

What is a recovery narrative?

We conducted a systematic review and narrative synthesis to develop a conceptual framework characterising recovery narratives (here) which was based on a pre-registered review protocol (here). The conceptual framework was validated in interviews with people from under-researched groups (here), and then used to create the INCRESE instrument to characterise recovery narratives (here) which is free to download (here).

Impact of recovery narratives

We conducted a systematic review and narrative synthesis to develop an impact framework describing the impact of recovery narratives on recipients (here), based on a pre-registered review protocol (here). The impact framework was developed into a change model through interviews with people from under-researched groups (here), and a causal change model for impact through connection was then experimentally developed (here).

Curation of recovery narrative collections

We conducted a systematic review and qualitative synthesis to develop a curation framework capturing decisions involved in curating recovery narratives (here), based on a pre-registered review protocol (here). A consultation with 30 curators from 7 countries was used to developed the VOICES typology for curatorial decisions (here) and to investigate the relationship between curator goals and curatorial practices (here). A systematic review of content and trigger warnings is currently underway, based on a pre-registered review protocol (here). We are also conducting a systematic review of uses and misuses of recorded mental health lived experience narratives, based on a pre-registered protocol (here).

Learning from recovery narratives

We developed a conceptual framework for post-traumatic growth in the context of recovery for people with severe mental health problems through interviews with people from under-researched groups (here). This informed a systematic review of mechanisms of action supporting post-traumatic growth which we are currently conducting, based on a pre-registered review protocol (here). We investigated the narratives of people with psychosis-like experiences who do not use mental health services (here). We also explored staff views about using recorded recovery narratives in clinical practice (here).

NEON randomised controlled trials

All the above work was integrated to develop the NEON Intervention (here). The intervention is being evaluated in three randomised controlled trials taking place in England from 2020 to 2022, based on the published trial protocol (here). We published principles for all our recruitment materials (here).